My world, as I knew it then, crumbled… being a healthcare provider didn’t make me any stronger; I cried! Yet, we still did not have any diagnosis. In my heart, I knew that the activity identified in her EEG was not a fluke. I knew something wasn’t right. By the end of December, we received another call confirming my child was found to have Seizure Activity(non-convulsive) in her sleep. I felt better that my intuition was finally validated. We had something identified to get the treatment for my daughter identified and started.
Raising a twice-exceptional child is full of awe, wonder, and challenges. Knowing that your child is unique and has specific gifts as well as some obstacles helps us parent with understanding and create a supportive atmosphere for them to thrive. We must advocate for what our kids need from schools. Furthermore, we also need to prevent others from stigmatizing or judging our children.